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1:55
TikTok
lucyhelen2
Understanding RDEB: My Journey and Hope
Explore my journey with RDEB and learn about the strength and hope that comes with living with this condition. #ebawareness #epidermolysisbullosa #hope #strength Lucy(@lucyhelen2). original sound - lyrically. This is a really hard topic for people to grasp(literally 😆). I really hope my pictures helped it make more sense. Also just because ...
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Peter Mesits on Instagram: "I wanted to bring awareness to my skin condition because it is very rare and complicated. I hope this video helps💪🙏 Recessive Dystrophic Epidermolysis Bullosa (RDEB) is a rare genetic condition that makes the skin extremely fragile. Even minor friction can cause painful blisters and open wounds that heal slowly and scar. Over time, repeated wounds on the hands heal with scar tissue that fuses the fingers together, creating “mitten” hands and limiting movement. Daily
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