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What's it like living with EB? Sanja in Norway (@lifewithdystrophiceb) was interviewed by @SeenStories to share her story. Sanja is a ray of light. Despite her daily battles with EB she is focused on living life to the fullest. 🦋💖 | EB Research Partnership
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FacebookEB Research Partnership
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It’s day two of EB awareness … this was the first time Marky spoke openly about how he knows people see him and how he wants to be seen … Chris with @specialbooksbyspecialkids is a unicorn of a soul and we love him dearly .. #story #special #awareness #eb #wefighteb #mystory #viral #reels | MarkyStrong
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Not based on a true story! 😂 I slayed listen to everyone’s stories 😃 Has this ever happen to you at work ? | EB Medical Aesthetics
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Do you have a story that tops this? 😂 #ebmotors | EB Motors
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