Pokojná hodinka v Tesco: Zvončeky a sklamania
1:04
Pokojná hodinka v Tesco: Zvončeky a sklamania
154.2K views10 months ago
TikTokmisko_syngap1
Magische Disneyland Ervaring voor Kinderen met Beperkingen
Magische Disneyland Ervaring voor Kinderen met Beperkingen
129.3K viewsDec 14, 2024
TikTokmistereasyyy
🎉 Zeen User of the Month: Kyle 🌟 Kyle is an inspirational young man who is living with rare genetic condition called SYNGAP1. With the Zeen’s secure seatbelt, upright support, and built-in fall protection, Kyle is empowered to safely practice walking, build strength in his legs, and move more freely throughout his home and community. “If it wasn’t for the Zeen keeping him safe,” his mom Kelli shares, “Kyle would not be able to practice independent mobility.” Kyle’s resilience, strength, and de
0:25
🎉 Zeen User of the Month: Kyle 🌟 Kyle is an inspirational young man who is living with rare genetic condition called SYNGAP1. With the Zeen’s secure seatbelt, upright support, and built-in fall protection, Kyle is empowered to safely practice walking, build strength in his legs, and move more freely throughout his home and community. “If it wasn’t for the Zeen keeping him safe,” his mom Kelli shares, “Kyle would not be able to practice independent mobility.” Kyle’s resilience, strength, and de
43.5K views8 months ago
TikTokzeenmobility
#syngap1 #raredisease #nonverbalautism #epilepsy #specialneeds
2:55
#syngap1 #raredisease #nonverbalautism #epilepsy #specialneeds
6.9K views1 week ago
TikTokmisko_syngap1
My daughter (9 years old but mentally & developmental at a 2yr old) has a genetic mutation called SNYGAP1, we’ve been to autism specialists & unfortunately they cannot diagnose with it since it’s more than that but she mirrors Autism kids (she lands in the “possible”) she is very smart when it comes to remembering places she loves, she’ll remember how to get there BUT she is non verbal. She will throw what we call tantrums & very long & loud ones because she gets frustrated that we can’t figure
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My daughter (9 years old but mentally & developmental at a 2yr old) has a genetic mutation called SNYGAP1, we’ve been to autism specialists & unfortunately they cannot diagnose with it since it’s more than that but she mirrors Autism kids (she lands in the “possible”) she is very smart when it comes to remembering places she loves, she’ll remember how to get there BUT she is non verbal. She will throw what we call tantrums & very long & loud ones because she gets frustrated that we can’t figure
35.6K views9 months ago
TikTokxogrizzy
Journey to Heathrow: A Family Adventure with British Airways
2:14
Journey to Heathrow: A Family Adventure with British Airways
27.2K views3 months ago
TikToktroublewithtoby
Understanding SynGAP: Part 1 Research Questions
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Understanding SynGAP: Part 1 Research Questions
165.3K viewsAug 21, 2021
TikTokcuresyngap1
2:43
kľudne môžeme pokračovať #syngap1 #epilepsy #nonverbalautism #mockery #shame
14.3K views5 months ago
TikTokmisko_syngap1
1:45
neuveriteľné #syngap1 #nonverbal #specialneeds #autismawareness #epilepsy
12.6K views5 months ago
TikTokmisko_syngap1
0:41
SynGap1 is a rare syndrome that causes seizures, developmental delays, hypotonia, and intellectual disability. It is a spectrum disorder and this sweet 22 month old seems to have a fairly mild case. He will, however, need many therapies. Please follow him on IG @greysonrow and support him and his sweet family. #syngap1 #curesyngap #syngap1foundation #greysonrow #syngap1awareness #shiningbright #brightfuture #raresyndrome #lovethisboy #beautifulboy @Syngap1 Foundation @SynGAP Research Fund
64.7K viewsOct 24, 2023
TikTokluna.shining.brig
1:45
Odpoveď používateľovi @miimi6100
9.6K views5 months ago
TikTokmisko_syngap1
0:59
April 2025 vs May 2026 😊Such a difference in 13 months! All thanks to the Neurocytotron machine
1.3K views1 month ago
YouTubeThe Trouble With Toby
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ns chvíľku zabaví #syngap1 #nonverbalautism #journey #specialneeds y #specialneeds
6.8K views5 months ago
TikTokmisko_syngap1
3:00
We met up with another Syngap1 family Carmen & Stelian from Romania have been following Toby's story
3.7K views3 months ago
YouTubeThe Trouble With Toby
0:26
#syngap1 #happytears #autismawareness #raredisease #specialneeds
10.4K views9 months ago
TikTokmisko_syngap1
0:59
autisti majú veľmi radi hračky, ktoré sa krútia #syngap1 #autismawareness #spinning #activitycube #toy
3.7K views5 months ago
TikTokmisko_syngap1
1:26
Impulsando la Conciencia sobre SYNGAP1 en Argentina
8.3K viewsJun 2, 2025
TikToksyngap1.argentina
1:32
Our Journey to Neurocytotron: A 19-Hour Adventure
2.2K views3 months ago
TikToktroublewithtoby
0:59
Antwort auf @Celine 🤓 Wichtige Botschaft: Eine genaue Untersuchung der Genetik bringt Klarheit & bietet oft wichtige Rückschlüsse. Danke euch für euren Einsatz zur Aufklärung von Syngap & genetisch bedingten Erkrankungen! Vernetzungsmöglichkeiten findet ihr hier: Instagram: @minimann_syngap Facebook: @Minimann's Leben mit Syngap Syndrom #minimannsleben #lebenmitbeeinträchtigung #genkrankheit #genetik #gentest #genuntersuchung #syngap1 #syngap1syndrom #hilfsmittel #austausch #epilepsie #autismus
9K viewsJan 24, 2025
TikTokrehanorm
0:06
🐁🔬🧬SYNGAP1 gene's role in cognitive function #neuroscience #genetics #cognitivefunction
2.1K viewsFeb 17, 2025
YouTubeScience X
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