This is 🦋Emma🦋. When she was born, her parents were told she wouldn't last a week. Because of the continued support from her family and the EB community, she is now 35 years old and living the best life she can live 💪. Your support matters to her and all those with EB. You will never meet braver people than those living with EB (epidermolysis bullosa). | Debra Ireland - The Butterfly Skin Charity

Our Community Support team are here to help EB families throughout their journey – whether they are taking their first steps, learning to write, or starting their first job. "DEBRA UK has been a lifeline, offering support grants for travel expenses and providing specialist items including sheepskin inserts for Albi’s car seat to make these journeys more bearable. Beyond the physical challenges, David has been a tireless advocate for Albi, explaining to local social workers about EB and offering

Sixteen-year-old Erica lives with recessive dystrophic EB — one of the most painful forms of this condition. EB affects every part of her life. Even eating and swallowing can cause wounds and unbearable pain. “It’s progressive, which means it gets worse as we get older. If Debra can get more funding, they can do more research for treatments, especially for younger children, so when they get older, their EB isn’t as bad as what my sister and I have.” EB affects the skin inside both and outside. I